Fibromyalgia Fibrositis List

Janey Pooh

Don’t ever give up on your dreams!

Research holds all our answers
Praying for world peace
How does a human heart hurt so deeply and still survive is beyond ME
CFIDS FM…

Enjoy the sunsets and sunrises,

Diana Saba
Retired Nurse
FM ME/CFIDS
Related Neurological Disorders
CDC’s Wm Reeves Must Go
Bring Back the GAO
Where did over 4 Million $’s of misappropriated funds go to?
CDC website linked NCF link to Porn ~ Why?

Grassroots Action for Myalgic Encephalomyelitis / Chronic Fatigue
Syndrome
http://www.co-cure.org/Congressional_Action.htm

Please Support NCF’s Research Plans
http://www.ncf-net.org/
http://www.ncf-net.org/Discoveries.htm

Please Sign Petitions
http://www.petitiononline.com/MEitis/petition.html
http://www.petitiononline.com.cfs2004/

May 12th Awareness Day
http://www.geocities.com/capitolhill/4277/

The One Campaign
http://www.one.org/

The HHV-6 Site
http://hhv6.freeservers.com/

Betrayal By the Brain:
The neurological basis of chronic fatigue syndrome, fibromyalgia
syndrome and related neural network disorders.
by Dr. Jay A Goldstein
http://home.vicnet.net.au/~mecfs/general/goldstein_summary.html

CFSAC Meeting Presentation ~ June 21, 2004
http://listserv.nodak.edu/scripts/wa.exe?A2=ind0407a&L=co-cure&F=&S=&…

~*I truly hope the January 2006 CFSAC meeting will be addressing our
continued efforts and concerns about our nations blood supply and FM
ME/CFIDS and all related neurological disorders*~

The January 10, 2006 CFSAC meeting did not take place
http://www.hhs.gov/advcomcfs

FM ME CFIDS Information Forum
Co-Cure Archives
http://listserv.nodak.edu/archives/co-cure.html

TCJRME
http://www.geocities.com/tcjrme/

Reading, Researching, Posting to AMF
1997-2006
http://hometown.aol.com/dgsaba/myhomepage/profile.html

Type AMF Abusers into the google search engine box.
http://groups.google.com/group/alt.med.fibromyalgia/search?q=AMF+Abus…

"What lies behind us and what lies before us, are tiny matters,
compared to what lies within us" ~ Ralph Waldo Emerson

Our Arthritis Support Group of South Lake County, Florida, "Blog
Journal" contains personal stories, medical articles & links and
creative writings / visual art for Bloggers with Arthritis, their
families, and friends just as we do at our "face-to-face" (F2F)
meetings.

Maybe there are others still in the shadows of loneliness and chronic
pain affected by all types Arthritis; Rheumatoid Arthritis,
Osteoarthritis, Gout, Ankylosing Spondylitis, Psoriatic Arthritis,
Lupus (SLE), Fibromyalgia, and many other forms.

Please post comments and sign-in our GUEST BOOK!
Arthritis Blog Journal address: http://arthritisgrp-slc.blogspot.com/

Meg King, Member & Volunteer Support Group Leader
Arthritis Support Group of South Lake County
Clermont, FL, USA 34711

"If instead of a gem, or even a flower,
 we should cast the gift of a loving thought
 into the heart of a friend, that would be
 giving as the angels give."  ~ George MacDonald

Angel
Siren of the Sea

Hi All.  Just wanted to check in.  My healing progress is going very slow.
They are like baby steps and sometimes a step backwards.  Spiked a
temperature of 101.1 yesterday but took Tylenol and it finally got normal.

Emotionally I think I am very angry inside for laying yet another challenge
on me this year.  My hospital experience was a nightmare.  I cannot even
talk about it yet.  I would not wish this whole experience on my worst
enemy.

I bought all these beautiful flowers to plant (a great joy for me in the
Spring).  Ed had to do all the work, although he seemed to rather enjoy it.
I think he was doing it for me.  He is the best…..truly…. He was so
lonely and worried while I was in the hospital he could hardly concentrate
on his work.

I will check again.  Be well everybody and thank you so much for your good
wishes, prayers and thoughts.  It means a lot to me.

Love n Hugs,

Nettie

Chronic fatigue syndrome: It’s not all in your head.
It’s a condition characterized by fatigue, pain, memory impairment,
and sleep disorders — and it has stumped doctors and researchers for
decades.

But a recent collaborative effort among 20 researchers specializing in
a variety of disciplines yields some promising clues.
The researchers included molecular biologists, epidemiologists,
mathematicians, engineers, and other investigators from around the
world. All used data collected from 227 people who underwent a series
of tests during a two-day hospital stay.

The results, published in 14 different articles in the April issue of
the journal Pharmacogenomics, suggested several genetic links. For
example, the investigators found that people with chronic fatigue
syndrome (CFS), when compared to controls, had different levels of gene
expression in areas involved in the hypothalamic-pituitary-adrenal axis
and the sympathetic nervous system. Both areas affect the body’s
response to stress. They also identified 28 different variations in DNA
sequences that predicted with 76 percent accuracy whether an individual
had CFS. The three most common variations were linked to brain
function, stress reactions, and emotional responses. Study participants
with CFS were also about twice as likely as controls to test high in
markers that indicated wear and tear on the body from environmental
stresses.

The researchers say these findings indicate that a biologically based
difficulty in managing stress may lead to CFS. While they were not able
to identify definitive genetic markers or determine how much genetic
variation triggers symptoms, principal investigator William Reeves,
M.D., who heads the Centers of Disease Control and Prevention’s CFS
public-health research program, says that simply knowing there is a
genetic link will help improve diagnosis and treatment.

Blissings,
Sam

Don’t believe everything you think. ~ Bumper Sticker
Many of the truths we cling to depend greatly on our point of view.
~ Obi-Wan Kenobi
Choose your illusion carefully. ~ Unknown
Who looks outside, dreams; who looks inside, awakes. ~ C.G. Jung
Just because I believe something doesn’t mean it’s true; just because I
don’t believe something doesn’t mean it’s untrue. ~ Sam

Amber got MRSA again and I contracted staph shortly thereafter despite my
washing my hands to the point of near rawness with antibacterial soaps.
Antibiotics do a bad, bad number on my IBS, so I have to eat at least 3
servings of yogurt a day (but it seems to work this time, at least).  Amber
is doing better (got antibiotics before I did) and I’m taking forever to
heal, as usual.  I really am suspecting that there is something in this
house that is reinfecting us, but after cleaning and disinfecting even weird
stuff like the smoke detectors (and the obvious stuff, like the computer
keyboard, telephone handsets, remote controls, etc.), I’m really baffled,
tired and yes, grumpy.  I feel like this is just extra (acute too) pain that
I just don’t need on top of the fibro and the nerve damage in my back and
legs.

Yes, I know, bitch, bitch, bitch… but I feel a little bit better now.  :/

Mary

I’m thinking of buying one of those things that goes on a chair that has
rollers in it that massages the back.  Any experience or recommendations?
I have a cheap one that heats and vibrates, but vibrations do nothing for my
spine.
Thanks!

dropping in to wave hi since i have dragged myself back out on to usenet.
it was nice to see some familiar faces.

fill you all in a bit later as its a bit late.

gentle giantish hugs to all

Bran

Hi guys and galls,

I am a newbie to this site and a recently re-diagnosed FMS’er.
Apparently I was diagnosed about 15 years ago however the doctors did
not really know what to do with it and just left me hanging with this
diagnosis.

I always experienced pain. One day here, the next day there. Not long
enough to be worried or see a doctor however painful enough to be
annoying. I have been diagnosed with IBS and stopped eating meat,
drinking soda etc just to make my day to day more bearable.

A few months ago I started slurring my speech, my face muscles were
numb, my vision was blurred, in addition to pain everywhere (shoulders,
neck, hips). Finally the doctor diagnosed me at 7 weeks ago with
FM…….I am still trying to come to grips with this life altering
decease.

I am currently on three different medications as well as Myofascial
therapy (which is the most painful ‘massage’ I have ever had! My
speech, vision and face are back to normal but the rest does not seem
to react to the meds and therapy.

Any suggestions, feedback you have would be much appreciated.

thanks everyone.

Monique